Thursday, January 24, 2013

it's been a while... but I'm back!!

It's been quite some time since I've been active on the blog!  The second half of 2012 was so busy for us that I really didn't have much time to keep up with blogging or with the Kaelyn's Kure facebook page.  But I'm ready to start up with posting more again, sharing updates, and getting ready to kick off 2013's fundraising and awareness efforts for CF!

So here's a few updates:
  • Kaelyn has been doing great!  It's hard to believe this year she will be 5 already... and starts kindergarten this fall... WOW!  :)  Her health has been really good and she had her annual CF review a month ago at the end of December.  The results came back looking great: 
    • Protein, iron, blood sugars, vitamins A & C all were great :)
      Vitamin E was elevated
      And vitamin D was once again low :(
      So just a few small changes to her daily vitamin intake to help adjust D & E levels! 
  •  I decided that as part of my fundraising and awareness support this year, that I wanted to participate in my first half marathon :)  I am not a big runner.  I'm active, but my endurance for running is very low.  So this will be a huge challenge for me and a major accomplishment to finish the race.  I'm not running to achieve a certain finishing time though, I'm running for a cure and for Kaelyn.  I really wanted to push myself through this challenge because I know that CF is a challenging disease for those who face it every day.  Part of being able to run for CF is raising money to support ongoing research for a cure... so to be able to raise more funds to help us get closer to that is another reason I'm running.  I decided to re-join my gym again, because the winter temps here in Pittsburgh are just too unpredictable.  With temps this week in the single digits and windchills below zero, I just couldn't face my hatred for the cold and run outside... but I knew I needed to get started with my running if I want to have a chance at meeting me goal of completing 13 miles (and I only have 3 months left to get at it).  Yesterday was my first day back in the gym and I'm following a half marathon schedule given to me by a friend.  Yesterday's distance to accomplish was 3 miles, and I completed it, but it was HARD!  Thinking about adding 10 miles to that over the next 14 weeks is intimidating, but I want to think positive that this can be done... and I have the most amazing motivation to help keep me focused, Kaelyn.  I will be posting updates of my progress as I go along for anyone who wants to follow me on this journey.

  •  Kaelyn's Kure is registered again for Great Strides 2013 :)  We currently have 9 people already registered with us to walk on our team.  The walk is scheduled for Sunday, May 19th at South Park and it's never too early to register as a walker.  As always, registration for this walk is free!  If you can't walk with us this year, but would still like to support our team, you can donate to team Kaelyn's Kure through the following link: http://www.cff.org/Great_Strides/JulieWeber  Last year we were able to raise over $15,000 as a team for CF and we're hoping to raise that much again or even more :)  We have such an amazing team and so many people who support us and helps us out each year to be as successful as we are doing what we can for the CF Foundation.  Thank you all again for the love and support - it is truly heart-warming to our family.
Team Kaelyn's Kure 2012