it's been a while... but I'm back!!

It's been quite some time since I've been active on the blog!  The second half of 2012 was so busy for us that I really didn't have much time to keep up with blogging or with the Kaelyn's Kure facebook page.  But I'm ready to start up with posting more again, sharing updates, and getting ready to kick off 2013's fundraising and awareness efforts for CF!

So here's a few updates:

• Kaelyn has been doing great!  It's hard to believe this year she will be 5 already... and starts kindergarten this fall... WOW!  :)  Her health has been really good and she had her annual CF review a month ago at the end of December.  The results came back looking great: 
  
• Protein, iron, blood sugars, vitamins A & C all were great :)
  Vitamin E was elevated
  And vitamin D was once again low :( So just a few small changes to her daily vitamin intake to help adjust D & E levels! 

•  I decided that as part of my fundraising and awareness support this year, that I wanted to participate in my first half marathon :)  I am not a big runner.  I'm active, but my endurance for running is very low.  So this will be a huge challenge for me and a major accomplishment to finish the race.  I'm not running to achieve a certain finishing time though, I'm running for a cure and for Kaelyn.  I really wanted to push myself through this challenge because I know that CF is a challenging disease for those who face it every day.  Part of being able to run for CF is raising money to support ongoing research for a cure... so to be able to raise more funds to help us get closer to that is another reason I'm running.  I decided to re-join my gym again, because the winter temps here in Pittsburgh are just too unpredictable.  With temps this week in the single digits and windchills below zero, I just couldn't face my hatred for the cold and run outside... but I knew I needed to get started with my running if I want to have a chance at meeting me goal of completing 13 miles (and I only have 3 months left to get at it).  Yesterday was my first day back in the gym and I'm following a half marathon schedule given to me by a friend.  Yesterday's distance to accomplish was 3 miles, and I completed it, but it was HARD!  Thinking about adding 10 miles to that over the next 14 weeks is intimidating, but I want to think positive that this can be done... and I have the most amazing motivation to help keep me focused, Kaelyn.  I will be posting updates of my progress as I go along for anyone who wants to follow me on this journey.

•  Kaelyn's Kure is registered again for Great Strides 2013 :)  We currently have 9 people already registered with us to walk on our team.  The walk is scheduled for Sunday, May 19th at South Park and it's never too early to register as a walker.  As always, registration for this walk is free!  If you can't walk with us this year, but would still like to support our team, you can donate to team Kaelyn's Kure through the following link: http://www.cff.org/Great_Strides/JulieWeber  Last year we were able to raise over $15,000 as a team for CF and we're hoping to raise that much again or even more :)  We have such an amazing team and so many people who support us and helps us out each year to be as successful as we are doing what we can for the CF Foundation.  Thank you all again for the love and support - it is truly heart-warming to our family.

Team Kaelyn's Kure 2012

 

 
 

success again!

I'm well overdue for some thank you's going out to some amazing people and businesses who helped to make out 2nd annual Cheers For A Cure fundraiser an even bigger success this year!  On Saturday, April 28th we put together our 2nd annual Cheers For A Cure which is the biggest fundraiser we personally host to raise money for Kaelyn's Kure and The Cystic Fibrosis Foundation.  This year's success surpassed last year's by $1,200, which brought our one night total to $3,900 raised for CF!!  I set the bar high this year, my goal was $5,000.... but hey, there's always next year and I hope to improve more and more each time this event comes around in the spring!  The turnout was simply AMAZING!  I'd say we had about 150-175 guests throughout the night and we couldn't be happier for all those who made it out to show their support for Kaelyn and our family.  WE ARE BLESSED TO KNOW YOU ALL!

While the event stresses me out at times and can be chaotic pulling it all together, it's well worth it in the end.  Even though I take the brunt of the stress, the event would not be possible without the help of some truly wonderful people.  I'd like to take the time to personally thank everyone again for their help and donations: 

Citywide Garage Door Co. – Kindle Reader Basket w/ Amazon gift card

Dennis King – Kindle Reader

The Bittner’s & Whalen’s – Kuerig Coffee Maker

The Weber Family – Blue Ray DVD Player

Snap-On Tools – Cordless Power Screwdriver

Snap-On Tools – Blue Point 8 Piece Pliers set

Weber’s – TaylorMade RocketBallz Tour Driver

Weber’s – Coach Purse

Studio Raw – Salon Basket w/ $150 cut & color

Jessica Clair – La Pomponnee Salon Basket w/ $100 GC

Ashlee Starr – Beauty Bar Basket w/ complimentary cut

Gina Beck-Cifelli – Salon & Spa On The Green Southpointe Beauty Basket w/ complimentary cut

The Seaman Family – Lottery Tickets Basket

The Rost Family – Beers of the World Basket

The Verscharen’s & Fite’s – Outdoors Basket
The King Family – Bakery Basket

The Burgos Family – Wine Lover’s Basket

The Hirt Family – Tastefully Simple Basket

Dana Sasuta – 31 Basket
Christine Nelson & Sue Shore – Bath & Body Basket

Heather Mann – Kid’s Summer Fun Basket

Erin Monohan – Sports Golf Basket

Joanie/Bright Horizons – Family Movie Basket

Cindy McMullen – Mr. Magic Basket

Pecosh Counseling & Consulting – Ice Cream Sundae Basket

Ed Planinsek – 2 wildlife prints

Clique Vodka - Clique Gift Basket 

Finally, we’d like to thank Aron Schutzeus for allowing us to host Cheers For A Cure at Milestone and for all his support with this event!

The night's success wouldn't have turned out the way it did without your help and support, so THANK YOU ALL!!  Also, a big thank you once again to everyone in attendance that night - we loved sharing the evening with you all to help raise money to cure Cystic Fibrosis!  Your support at these events is making a difference - the money we are raising is generating life-changing research and new drugs that are doing things we have all been waiting for in the CF community. 

As we are just days away from the 2012 Great Strides Walk, I am very touched by all the people who have made a contribution to team Kaelyn's Kure this year.  Our family looks forward to walking with you all again on Sunday!  Here's some quick reminders for Sunday morning:

1. If you are NOT registered online by Sunday, please come to the walk a little earlier so you can complete your registration.  I'd say to arrive by 9:30am.

2. If you're already registered, please arrive to the museum building no later than 10:00am.  Be sure to check-in at our table inside.

3. Remember, EVERYONE must be registered to walk - including children.

4. Don't forget to wear your purple Kaelyn's Kure team t-shirt!  We will bring all the new orders with us on Sunday.  If you haven't paid us yet, please do so on Sunday.

5. Our Team Picture will be at 10:30am on the track.  We'd like to have everyone on our team in the picture, so please try to make your way to the track around that time.

6. The walk will begin shortly after pictures and there will be a small lunch served afterwards.  Plenty of water and pop will also be supplied.

7. There is a Chinese Auction at the walk with lots of great prizes - if you're interested, please bring cash to buy tickets.  All money raised goes to CF.  There will also be a few children's baskets too.

See you all on Sunday!!  If you still need to register or would like to make a donation if you're unable to walk, please visit:  http://www.cff.org/Great_Strides/JulieWeber

save the date!

It's that time of year again when Kaelyn's Kure is in full swing getting ready for the Great Strides walk!  The walk this year will be on Sunday, May 20th at South Park.  Our team will be ready to take on the walk again as we walk for Kaelyn and Cystic Fibrosis.  Last year's walk, which was our very first Great Strides, was beyond successful!  Our team consisted of 85 walkers and we managed to raised almost $11,000 for the Cystic Fibrosis Foundation!  Those funds are what brings the science and research to the table for CF and adds years to many lives, which is so, so very important!  If you'd like to join our team for the walk, or donate in honor of Kaelyn, visit our Great Strides page:  http://www.cff.org/Great_Strides/JulieWeber

A big part of last year's success for our team was our fundraiser in April, Cheers For A Cure, which we will be hosting again next month!  It will take place on Saturday, April 28th and we will be holding the event at Milestone in Brentwood on Brownsville Road. 

We plan to once again have a Chinese auction and 50/50 raffle.  If anyone is interested in volunteering to provide any baskets, prizes, or gift cards for the auction, please let me know!  You can email us at kaelynskure@gmail.com or get in touch on Facebook.  Right now we are looking for any and all types of baskets - last year we had a garden basket, 2 wine baskets, a picnic basket, cooking basket, outdoors basket, and mixed drink basket.... along with several different prizes and gift cards.  We truly love the support of our friends, family and volunteers who help us to make this event such a success!

As the event gets closer and all our ideas start coming together, I will post more details.  :)
For now, please help us spread the word and don't forget to SaVe ThE DaTe!

Cheers For A Cure

Saturday, April 28, 2012

Milestone in Brentwood - Brownsville Road

Walk with Team Kaelyn's Kure
Great Strides for CF

Sunday, May 20, 2012

South Park @ 10:00am

what a feeling!

Yesterday marked a major milestone in the CF community as the FDA approved Kalydeco, the VERY FIRST DRUG to address the underlying cause of Cystic Fibrosis!!  This is a HUGE advance in the search for a cure for CF!  Although Kalydeco only benefits those who have the G551D mutation and are 6yrs or older (roughly 4% of the CF population), it represents true hope for the future of ALL who suffer from this disease.  Many doors have now been opened because of the science behind the drug, and a cure has never been closer in the history of Cystic Fibrosis!  Kalydeco dramatically improves lung function, lowers chloride levels and helps patients gain weight - all key problems in those with CF.

See the announcement:  http://www.cff.org/aboutCFFoundation/NewsEvents/2012NewsArchive/1-31-FDA-Approves-Kalydeco.cfm

A key point to remember with Cystic Fibrosis is that not all cases are the same and more than 1,000 mutations cause the disease to occur.  I'm sure you're thinking, "that's a lot of mutations", however those 1,000 mutations in the CF gene fall into six different categories or classes.  Understanding each of the six classes will hopefully allow researchers to develop treatments for each specific class.  Treatments that work for an individual will depend on his/her mutation.  This is exactly what the advancement with Kalydeco is doing - it targets the underlying cause of CF for the G551D mutation and restores health.  To get a full understanding of the CF mutation categories and classes, follow the link I have provided from the CF website:  Targeting Mutations that cause Cystic Fibrosis

It's amazing how much has changed in the CF world just since Kaelyn's diagnosis three and a half years ago!  To think back to my very first readings and research on CF when we got the phone call that she would need to be tested... reading "average life expectancy is 37 years" - the heartbreak we felt... to the feeling we felt yesterday reading the news of Kalydeco and the FDA's approval.  WHAT A FEELING!  A feeling of success and celebration in the CF community, and also a feeling of HOPE for the future... which one day I'd love to describe the feeling when I read, "We've found a CURE for Cystic Fibrosis!".  And we're getting close....

Thank you to all of you who have donated to, organized, or attended an event for the CF Foundation!  Your generosity and efforts prove that we can find a cure for CF!  A cure has never been closer, so please don't stop - continue to help and show your support... you're helping to save many precious lives!

Lastly, I wanted to share our 2011 Thank You Tribute video in honor of all those who helped and supported Kaelyn's Kure last year... our incredible success was because of each and every one of you!  Whether you walked, donated, came to any of the CF events, bought a t-shirt - THANK YOU!  Celebrate the success of this news as well, because your efforts are what made this milestone possible for the CF community.  You all have a special place in our hearts and especially in Kaelyn's.

Make a video - it's fun, easy and free!
www.onetruemedia.com

getting closer!!!

So many amazing news headlines and stories have been popping up this month in the CF community - and amazing might just be an understatement... more along the lines of life-changing for a small percentage of those with cystic fibrosis!  This is the news that anyone who battles this disease on a daily basis has been waiting to hear.  I decided to break down all the stories I've read over the past week to highlight some of the key information as drug makers get closer and closer to new treatments for CF that could stop the horrible impacts of the disease.

So many of you who know Kaelyn and our family have reached out earlier this year to help us raise funds for cystic fibrosis, and while you know in your mind that you did a wonderful thing, you might not know just how big of an impact your contribution really is.  Sure you could do what I did - read all the news/information about what's happening on your own.  However, it might not all make sense to you - so here I go..... I'm by no means a scientist, but let me try my best to break down what's happening so you can see what a difference your help has made.

First off, no 2 cases of CF are exactly the same.  Cystic fibrosis is progressive and the progression of this disease along with the severity of it's symptoms vary from person to person.  While it's true the average life expectancy is mid-30's and some live well beyond those years, we unfortunately are still losing lives entirely too young.  I'm talking about children who still aren't making it to elementary school, teenagers who don't get the chance to graduate high school, and the list goes on.  How is that fair?  Is living a life to the age of 35 a long enough life for you?  I'm going to safely assume probably not, so why should we settle for it be a long enough life for someone with CF?

I've seen the destruction CF can bring to families, through the eyes of the others in the CF community.  It's devastating what this disease has done to some of these families and to the young lives that fought the fight and unfortunately lost their battle.  These children so weak, so sick but at the same time so very strong & brave and they are now in the hands of God, as an angel watching over the rest of us like Kaelyn.  I know every time I blow out the candles on my birthday cake, I'm wishing for a cure for our little lovebug and I'm certain Chad wishes for the same thing every year too.  We've said prayers over and over again to watch over Kaelyn and keep her healthy through the years.  Well it looks like some of the wishing and prayers are being heard...

Just last week on October 20th an announcement was made by Vertex Pharmaceuticals that the drug Kalydeco (vx-770) is finally under review for approval by the FDA.  This will be the very first drug on the market that will target the underlying cause of cystic fibrosis.  Currently any treatments CF'ers receive to date only help to relieve symptoms.  While these treatments are effective and prolong life, the new drug should be able to add decades of life over a short period of time!  How amazing, right?!?  This phase of the drug however will only benefit those who are 6 years or older and who have at least one copy of the rare G551D mutation.  Only 4% of the CF population have this copy, but that's approximately 1,200 lives that could potentially be changed in a dramatic way! 

HUH?!??  I'm sure some of you are saying that to yourself right now.  As some of you might remember reading or hearing me say before, cystic fibrosis is a genetic disease which has thousands of known CF mutations - G551D is just one of them.  Kaelyn unfortunately doesn't fall into either of the 2 criteria for the drug - she's only 3 and does not have a copy of the G551D mutation.  Her genetic mutations are DeltaF508 and P5L.  DeltaF508 is the most common gene mutation of CF.  The good news is, right now clinical trials are taking place to evaluate Kalydeco in combination with another drug (vx-809) that would benefit those with a copy of DeltaF508 - And Kaelyn has a copy!  It is their hope that with time they will be able to benefit ALL people with CF and this is a major step in that direction!

It's sometimes hard for friends and family to grasp the enormity of cystic fibrosis.  Most of the time with Kaelyn, no one would even know she was affected.  Right now, we couldn't be more thankful for her health and her pretty much symptom-free 3 years of life she's lived so far.  We know in the back of our minds though that cystic fibrosis IS progressive.  What's unknown is the path and rate of that progression.  We need to stop that progression so kids like Kaelyn can live long, healthy lives!

If you want to be a part of curing a disease that will give futures to many little kids, please continue with us in our fight against CF.  As I said in the beginning, life-changing things are happening right now!  Keep your prayers coming, we're getting closer!! 

Outstanding Results!

I know it's been long overdue for me to post about Team Kaelyn's Kure and the success we had at our first Great Strides walk, but things have been pretty busy over the past month since the walk!

Overall, the South Park walk location raised over $120,000 last month at our walk on May 22nd!  Simply amazing!  What's even more amazing is that Kaelyn's Kure helped to contribute almost $10,000 to that grand total!  It looks like our team total came in at $9,933 - which is so awesome, especially since the average most new team's raise is approximately $1,500 their first year walking with Great Strides.

I feel so blessed to have met so many wonderful people who have reached out to support cystic fibrosis and Kaelyn.  I know as she gets older and realizes what CF is all about, along with the support she's had growing up, she will feel just as blessed that you all have been there for her since the day we found out her diagnosis.  To only be 3 years old and have such a strong support system will mean the world to her in the future.

The best part of the walk last month was seeing all the faces who showed up in their purple Kaelyn's Kure t-shirts to walk with us.  Our team was 85 walkers strong that day, and while most faces were familiar, we also had some new faces join our team - we couldn't be happier in meeting you and having your support!  Another amazing part of the day was seeing some friends whom we hadn't seen in a few years!  All in all, it was just a fantastic day!

TEAM KAELYN'S KURE 2011

To view even more pictures from the 2011 Great Strides walk, follow the link below and if you haven't already viewed and "liked" Kaelyn's page, please do!  We use it to keep everyone up to date on upcoming fundraisers and to help in continuing to spread awareness about cystic fibrosis!

More pictures from Team Kaelyn's Kure - Great Strides 2011:

https://www.facebook.com/media/set/?set=a.189689761078792.50532.174010899313345

Thanks again to everyone who, in some way or other, supported CF this year!  And remember, you can continue to support the foundation at any time, there's always fun things going on all throughout the year.

  

Keep in mind that your help has made you personally responsible for helping improve someone's life!  =)

Great Strides Walk Information

Family and Friends,

For everyone walking with Kaelyn's Kure this Sunday, you must be registered.  This includes ALL AGES, so kids too regardless of how young!  The foundation would like everyone to try to register online to save time on walk day.  You must sign up online by NOON today - otherwise you will have to register again on Sunday in person.  Follow the link below to register.  Click on "Join My Team" once you arrive on the page.

http://www.cff.org/Great_Strides/JulieWeber

Everyone is to meet in South Park inside the building with the big clock on it by the track and baseball fields.  If you still have not registered yourself or your kids, you can do so then.  If you pre-registered online, YOU WILL STILL NEED TO CHECK-IN at our team's table.  All tables will be labeled with team names - look for Patty and Marie at our table.  They will be taking new registration forms, donations, and checking you in. 

If you raised $100 under your own name for the walk, you will be given a ticket upon check-in for a free Great Strides t-shirt complimentary of CFF!  Patty and Marie will have everyone's info at the table and how much you've raised/donated.  Kaelyn's Kure team t-shirts will be available through myself or Chad if you have not picked yours up from us prior to meeting on Sunday.  

Please make sure you arrive at check-in by 10:00am.  After checking in, feel free to check out the gift baskets or take part in the 50/50 raffle.  These prizes will be raffled off before the walk begins at 11:00am.  Team pictures will be taken for each team participating in the walk, so be sure to stick around so we can find you when the time comes.

Our team will be honored for our awesome effort with a big customized banner at the walk!  All banners displayed at the walk represent the individual teams who raised over $5,000 as of April 30th.  Although all our funds still haven't posted to our team online yet, I believe that our team is closing in on $8,500 currently!  We've done such a wonderful job as a team for our first year being involved with the walk!  The efforts that everyone has put in to support Kaelyn's Kure and CF have truly touched our hearts!    Since CF research is not government funded, your donations matter greatly!  Without your help, Kaelyn wouldn't have the treatments she needs to stay healthy!

Kaelyn's Kure was also chosen by the CF organization to cut the ribbon before the walk begins!  This honor was decided because of our outstanding efforts during our first year with Great Strides!  Chad, Kaelyn, and I will cut the ribbon, and then Kaelyn's Kure will lead the walk on Sunday!  :-)

Don't forget, after the walk food will be provided too!  We will have water at our team table as well as pop and other drinks.  We're looking forward to the walk, and also seeing some old friends we haven't seen for a while!  Thank you in advance to everyone who's planning to come out this Sunday!  If you have any other questions, please get a hold of us.

PS - A friendly reminder about smoking: 

We all know smoking is bad for you, but for someone with CF, it's a fast track to irreversable lung damage, and this includes second hand smoke!  We have to be careful where we take Kaelyn, keeping in mind if there will be smokers there or not.  The key to keeping Kaelyn healthy and alive for as long as possible is by protecting her growing lungs.  The same goes for all the other CF'ers who will be at the walk.  Please refrain from smoking at this walk or around the other teams who will be participating.  It's so important to all of us and to the lungs of the CF individuals!

Watch our video!

Make an on-line slideshow at www.OneTrueMedia.com

Truly Touched...

The generosity of others towards CF throughout the past several weeks has been simply AMAZING!  We are blown away by the huge support system we have from family and friends - AND, what's as equally touching and amazing is the kindness of complete strangers who have been reaching out to Kaelyn's Kure and CF.

The Cystic Fibrosis Foundation is the world’s leader in the search for a cure, and the foundation funds more CF research than any other organization.  Nearly every CF drug available today was made possible because of foundation support from people like you!

Right now, SO many exciting things are happening in the CF community and I encourage you to take a look at the 2 articles below.  By supporting CF, you're helping to make these types of research opportunities possible and giving hope to the 30,000 kids and young adults fighting this horrible disease!

http://www.cbs59.com/story.cfm?func=viewstory&storyid=96698

http://news.yahoo.com/s/livescience/20110512/sc_livescience/teendiscoverspromisingcysticfibrosistreatment 

Kaelyn's Kure has met and EXCEEDED our goal in our very 1st year of having a Great Strides team!!  We set our 2011 goal at $5,000 and today we just surpassed that goal - currently coming in at $5,055 in online donations alone!!  AMAZING!  AND this total doesn't yet include the Jose & Tony's fundraiser funds yet.  (It takes a lengthy amount of time, especially in the month of May for funds to process and post online.)  But, with that being said, we are currently looking at a team total of close to $8,000 and we aren't done yet!!!  Wonderful job so far everyone - can't wait to hear the official total at the walk!  We can't thank you enough for being on our team!  Whether you're walking with us next Sunday or you're one of Kaelyn's Angel Walkers (you can't make it to the walk, but will be there with us in spirit), our team wouldn't be this huge and this successful without each and every one of you! 

Our 1st year's success with Great Strides has landed us a surprise honor on the day of the walk, but we'll save the surprise for next week!  For those who are unable to make it, no worries, we'll fill you in and post pictures from the day!  =)

It's still not too late to sign up as a Walker or Angel Walker - there's still a week left until the walk and Kaelyn would LOVE to have you on her team!  Click on the Great Strides image below to join the team or to check out our team's total raised to date!  See you all next weekend - fingers crossed for NICE weather, I know it's hard to come by in the city!  (Kaelyn's Kure t-shirts will be in next week if you ordered one)

xoxoxoxo

 

Kaelyn's Kure Walk T-Shirts

The Great Strides Walk is quickly approaching and we couldn't be more excited to participate in our first walk!  Chad and I are taking orders for our team's customized t-shirt which will feature our team name in white font on a purple shirt.  We choose purple since it's the CF awareness color!  :) 

Please let me know ASAP if you'd be interested in a shirt (and a size) for the walk on Sunday, May 22nd!  If you are unable to make the walk, and would still be interested in purchasing a shirt in honor of Kaelyn, please let me know!   Shirts will be approx. $5.00-$6.00 each.  We are also checking on the availability of shirts in kids sizes as well for anyone who might interested! 

We hope to get as many ppl as possible on the team to wear our customized team shirt in honor of Kaelyn!  I will be posting more walk information over the next 2 weeks, so check back for updates!  We look forward to seeing everyone at the walk!  Thank you all for your efforts leading up to this day!  :)  

Love, 

The Weber's

First Fundraiser for Kaelyn's Kure is Big Success!!

Thank you!  Thank you!  Thank you!

We just can't seem to say it enough!  Our first fundraiser which took place last Thursday (4/21) was a big success!  I'm blown away by the amount of people who were in attendance - we packed Jose & Tony's pretty much to the max that night!  The help, support, and generosity from everyone who took part in the event really touches our hearts and our family deeply appreciates all that was done to make the event possible.  

Whether you were able to make the event or made a donation towards it - THANK YOU!!  We had so many wonderful raffle prizes, gift cards, and baskets to give away... actually way more than we had expected!

We hope that everyone enjoyed themselves as much as we did, and we're hoping to do an annual fundraiser for Kaelyn's Kure every year before the walk!  We raised $1,150 in tips alone last Thursday, and brought in an additional $1,650 from the raffles!  Really, really fantastic - just shy of almost $3,000 for Team Kaelyn's Kure and the Cystic Fibrosis Foundation!  If you've been following our team's total on the Great Strides page, you should see it jump to over $7,000 within the next few weeks once all the additional money we've collected recently posts to our team!

I'd like to give special recognition to all those who dedicated their time or made a donation to our raffle:

Jose & Tony's - Maggie O'Neill and her cousin for bartending the event, along with Kelly and Lam for helping with all the ticket sales throughout the night.  The night wouldn't have been possible or as successful as it was without your help!

Citywide Garage Door Co.

Gander Mountain/Jeff Fite

Comfort Inn/Jack

Eat N Park

Snap-On

Sergio's/KaraKerns

Subway

Coors Light

Jackson's

Don Bell

Gene Ciavarra

Kristin Rost

Loni Brazen

Patty Weber

Jen Verscharen

Jamie Burgos

Jessica Nelson

Cindy Cochran

Melissa Johnston

Ashlee Starr

Rendie Settles

THANK YOU ALL AGAIN!  (sorry if I missed anyone!)  And thank you to everyone who took a few hours of their evening to stop in and join us to make a difference in the lives of all those affected by Cystic Fibrosis!  Your donations truly do make a difference in the CF community!

 

Our First Fundraiser this Thursday 4/21/11

"Cheers" for a Cure at Jose & Tony's

With only a few days left before our very first fundraiser to support team Kaelyn's Kure and the Cystic Fibrosis Foundation, we couldn't be more excited for this event!

"Cheers" for a Cure will kick off at 7:00pm on Thursday evening at Jose & Tony's in Mt. Lebanon!  We are looking forward to having a fantastic time with family, friends, and new friends as we come together to support CF!  The doors are open to anyone who would like to attend, so feel free to spread the word and bring along anyone you'd like!

With the help of a lot of really wonderful people in our lives, we have put together what we believe will be a great night!  Many awesome items have been donated for our Chinese Auction - including tickets to shows, gift cards, and a variety of baskets.  Raffle tickets can be purchased upon arriving at the event.  We also plan to have a 50/50 as well, and 100% of your bartenders tips collected will be donated to team Kaelyn's Kure and CFF!

This won't be the last time you'll hear me say this before Thursday is over, but thank you so much to all who have helped or donated to this event!  Wonderful things are happening right now in the CF community with the development of new drugs and treatments for those battling CF - these amazing things are all happening because of the help and support from you!  We can't thank everyone enough for their continued help in adding tomorrow's to the lives of all the children and adults fighting this battle each day!

We look forward to seeing everyone and meeting some new faces too as we raise our glasses and "Cheers" for a Cure!!  C-ya on Thursday!

"Cheers" For A Cure

Thursday, April 21, 2011

7:00pm

Jose & Tony's Mexican Restaurant/Bar (Mt. Lebanon)

1573 McFarland Road

Pittsburgh, PA 15216

Much love,

Julie, Chad, and Kaelyn

"Cheers" for a Cure - Join Us at Jose & Tony's

Please Join Us on Thursday, April 21st!

"Cheers" For A Cure

at

Jose & Tony's Mexican Restaurant/Bar 

Supporting Kaelyn's Kure & the Cystic Fibrosis Foundation

What better way to support a wonderful cause and add tomorrow's to all of those affected by Cystic Fibrosis than by having some fun?!?  Please join us as we "Cheers" For A Cure and come together for a night of fun, family, and friends to raise awareness towards Cystic Fibrosis.

The event will take place at Jose & Tony's Mexican Restaurant/Bar - Our friend Maggie, along with her cousin, will be coordinating a variety of fundraising events for the evening including a 50/50 raffle, silent auction, etc.  100% of tips collected that night will be donated to the Cystic Fibrosis Foundation's Great Strides Team: Kaelyn's Kure.

Kaelyn's Kure will be walking in Great Strides 2011 at South Park on Sunday, May 22, 2011.  So far our team has raised almost $3,300 for our very first walk with CFF's Great Strides.  Our goal is to raise $5,000 this year, and we are well on our way thanks to our wonderful family and friends, along with other generous supporters who have reached out to help for a great cause!  We couldn't do this without all of you and we thank you all from the bottom of our hearts - you are doing a wonderful thing by adding tomorrow's for those affected daily by CF!  It's an awesome feeling to see everyone come together!  We hope to see you all there!  :-)

"Cheers" For A Cure

Thursday, April 21, 2011

7:00pm

Jose & Tony's Mexican Restaurant/Bar (Mt. Lebanon)

1573 McFarland Road

Pittsburgh, PA 15216

If you can't make it to the event, but would still like to make a donation, click on the link below. 

Click here to donate to Great Strides - Kaelyn's Kure

Fat Head's Saloon Brewer's Ball

For those of you looking for a fun night out where the money you spend will go towards a great cause, consider joining us at the Fat Head's Saloon Brewer's Ball on Friday, May 6, 2011!

The best part about a lot of the fundraisers for CF is that you still get to enjoy doing the things you love to do, while knowing that the money you spend is going towards saving lives and finding a cure for CF!  Who wouldn't love a night out with friends to drink some beers to eat good food??  Most of us have nights out like that on a regular basis already (a little dinner, or a few drinks with friends), so consider making this night out extra special by joining us at the Brewer's Ball in SouthSide Works at the Circuit Center Ballroom!

CLICK HERE FOR MORE INFORMATION ABOUT THE BREWERS BALL